Australasian Multiple Sclerosis Network of Care Multiple Sclerosis Network of Care Australia

A Voice for People Affected by MS

Early Days - Video Archive 

CCSVI Australia

''Towards the Future'' TurnOnthe Tap
Contact the Network
Advanced Research
About this Road Map
  About the Network
  Site Map
  Topic Index
  Case Study
About Multiple Sclerosis
  What is MS?
  Vascular Issues
  Living with MS
  Quality of Life
  Charter of Rights
  Issues & Needs
  Regional Support
  Service Guidelines
  Care Standards
  What is CCSVI? 
  Parliament's Role
  Dispelling the Myths
  Talking Points
  CCSVI Face Book
  Innovation  & CCSVI
  Life Quality & CCSVI
  Adapting to Change
  A Right to be Tested
  The Early Adopters
  Patients Perspective
  Treatment & Contacts
Support Services
  Carers & Respite
  Home Care
  Income Support
  Network of Care 
  CCSVI Australia 
South Australia
West Australia 
Early Days
  Horizon Group
  Discussion Archive
  Pathways Project 
  Video Archive


Social Media Abstracts News Headlines Advanced Research CCSVI Research Database
The Video Archive was developed as an educational resource during the period 2003 to 2011. Given the rapid development of Social Media during the latter part of this period (and the consequential cross referencing of video based presentations throughout all areas of this Road Map), it is no longer maintained as a resource in its own right. It has however been retained as an historical research resource. Information is broadly categorised under the headings of Towards the Future , About Multiple Sclerosis and Living with Multiple Sclerosis.  
Vascular issues and MS - 1 minute research by Professor Zamboni (June 2009) showed a significant association between blood not draining properly from veins and multiple sclerosis - a condition referred to in the literature as chronic cerebrospinal venous insufficiency (CCSVI). In what is a rapidly emerging phenomena a significant percentage of pwMS are being identified as having this problem. It is understood to be a congenital condition whereby a vein abnormality inhibits the flow of deoxygenated blood back to the heart.  In many cases it may be possible to correct this condition, using an established day surgery vascular procedure known as balloon angioplasty - more about this topic Video
Australian Early Adopters - Kerri Cassidy - On Monday 21 March 2011, CCSVI developments, including those in Australia, were reflected in a presentation on the ABC radio Health Report by Dr Norman Swan who is is a multi-award winning producer and broadcaster. His career is highlighted by his desire to keep the Australian public informed of health developments as they happen. One of the first medically qualified journalists in Australia, Dr Swan is highly regarded by the medical and health professions. His presentation includes an interview with Kerri Cassidy, one of the first CCSVI 'early adopters' in Australia -  more about this topic. Listen
Other Vascular Irregularities and MS - Since June 2009 there have also been range of other developments about ways that vascular irregularities may be associated with multiple sclerosis progression. These developments are running in parallel with advances in the technologies used to identify and monitor issues of this type. Some of these developments have a direct association with MS. With others, possible associations are more general - more about this topic. More
A Balanced Perspective on CCSVI  - 16 minutes  Dr.Salvatore Sclafani, MD, former head of Interventional Radiology, SUNY University, New York is an Interventional Radiologist who gave up his prestigious position at a Brooklyn hospital to devote his career to researching and treating CCSVI. In an interview in March 2011, he described the environment as being an 'Age of Discovery' in which maintaining and improving the Quality of Life of people living with MS, while at the same time, enhancing medical knowledge through 'hands on experiences', have become cornerstones for MS management. This video interview provides a balanced perspective to the current 'state of play' regarding CCSVI developments across the globe - more about this topic Video
History, Politics and Science of CCSVI - 16 minutes  - On 24 March 2011 a video presentation by Dr Kirsty Duncan a medical research scientist (and a member of the Canadian Parliament) became available. The presentation was made at The First International Venous Endoplastic Forum in Poland from 13 to 15 March. By succinctly addressing the history, politics and science of the CCSVI debate from a Canadian perspective Dr Duncan provided an inspirational overview about key issues associated with CCSVI - most of the issues she spoke about have a high degree of relevance in Australasia. This video is a 'must watch' for Australasian politicians, Medical experts, MS organisations, News media and most importantly the 26,000 families living with MS in Australia and New Zealand - more about this topic Videos
Vibration Therapy - Improving muscle function - Massey University, New Zealand, reports about the benefits of vibration therapy in improving muscle function for pwMS.  Researchers said "we wanted to apply vibration therapy to a group who could benefit the most, People with MS, because they can't use their muscles in a fully co-ordinated way, often don't get any physical activity. Some of the health problems they end up with are, in fact, related to the fact they are not exercising so there is real potential for these people. A possible flow on from the CCSVI hypothesis is that there may be increased interest from the MS community and health care professionals, to complement the CCSVI treatment with physical therapies to help to rebuild function - vibration therapy, properly applied may have an important role to play in this process - more about this topic Video
The Brain that Changes Itself - Norman Doidge MD  An insight from which we all can benefit. Brain plasticity portrayed in a fascinating study...a rich literary story interwoven with scientific evidence. This book is about the revolutionary discovery that the human brain can change itself, as told through the stories of the scientists, doctors, and patients who have together brought about the astonishing transformations documented in the book. While this publication does not specifically reference studies relating to MS there are many parallels. Click here to read more about brain plasticity and MS. Video

Living with the effects of MS - 3 parts each around 8 minutes  Doctor Anita Rose from the Walton Centre in Liverpool talks about the psychological challenges involved, coping mechanisms and the support that is available. She explains what kinds of psychological challenges people with MS might be confronted with when faced with a diagnosis of multiple sclerosis; the changes that might be incurred by the condition; the emotional impact there might be on others, such as family and friends - more about this topic. Video

MS Overview - Dr Elizabeth McDonald - 4 minutes   Multiple sclerosis is a common chronic neurological disease affecting young Australians. Dr Elizabeth McDonald talks about the prevalence, types, symptoms and treatment of multiple sclerosis - more about this topic Video
What is Multiple Sclerosis  - a clinical perspective - 8 minutes  A graphic representation that examines what happens during an MS attack leading to diminished or lost function - Medical University of South Carolina out Video
Risks, Placebos and Mythbusting - 8 minutes   Alasdair Coles, Neurologist, University of Cambridge. Discusses the range of treatments for MS, the 'real' and 'dodgy' ones, what the future holds, the risks of undertaking unconventional therapies and also leaving MS untreated. Explores how to chart a course through the options - more about this topic Video
MS - MRI past, present and future - 7 minutes  Professor David Miller, Professor of Clinical Neurology, and Head of Department of Neuro inflammation, Institute of Neurology, UCL Discusses how MRI scanning has contributed to understanding the mechanisms underlying MS and to the effectiveness of treatments. Explores future challenges. Video
Genetics and MS - 8 minutes  Professor George Ebers, Head, Department of Clinical Neurology, University of Oxford. Describes recent research developments in understanding the way in which genetic susceptibility is inherited. New findings reveal this is far more complex and interesting than first thought. In February 2009 a breakthrough research project established a genetic link relating to Vitamin D deficiency and MS - read more about this research.

A study published on 30 September 2013 confirmed that there are now 110 genetic variants associated with MS – previously thought to be 57. Although each of these variants individually confers only a very small risk of developing multiple sclerosis, collectively they explain approximately 20 percent of the genetic component of the disease. The genes implicated by the newly identified associations underline the central role played by the immune system in the development of MS and show substantial overlap with genes known to be involved in other autoimmune diseases such as inflammatory bowel disease, Crohn’s disease and celiac disease.
About this study
Vitamin D and MS  A Harvard University study published in December 2006 provides compelling evidence that Vitamin D, the so called Sunshine Vitamin, may protect against MS. Some further research on this topic is being undertaken by Australian Scientists. In February 2009 a breakthrough U.K and Canadian research project established a genetic link relating to Vitamin D deficiency and MS - Read more about this research. In June 2009 Australian and New Zealand researchers made a further breakthrough about the nature of this genetic link by pinpointing two regions in the human genome which contain genes that increase a person's risk of developing MS.

In June 2010
public health researchers from Harvard having reviewed the literature on vitamin D in MS, have suggested that over 70% of cases of MS in Europe and the USA could be prevented by keeping people's vitamin D levels above 100nmol/L.  Guidelines for Vitamin D supplementation have also been published by the Menzies Research Institute.  Read more about Vitamin D.

Pregnancy and MS  In April 2010 researchers at the Australian National University
identified the first trimester of pregnancy as significant in establishing an association, in the fetus, between MS and vitamin D deficiency. In March 2012 a study by the Murdoch Children's Research Institute in Victoria,  found women with at least one child have about half the risk of early MS symptoms compared to women without children. The risk of developing symptoms of MS appear to drop with each additional child. Find out more about Pregnancy and MS.
Stem Cell Therapies - 8 minutes  Professor Charles ffrench-Constant, Professor of Neurological Genetics, University of Cambridge. Explains (2008) the importance of stem cells in our brains in contributing to the repair of myelin, and presents his vision for what might be happening in 10 years time. To check out the latest about stem cells developments including what's happening in Australia click here. To watch Amy Peterson's excellent overview click here. Video
The future of disease modifying therapies - 8 minutes   Professor David Bates, Professor of Clinical Neurology, University of Newcastle upon Tyne. Explains what we can expect with a new generation of disease modifying therapies, which present challenges in relation to toxicity and tolerability. How doctors work with their patients to weigh the risks and benefits will be critical. More about medications. Video



'If I had MS'  - A doctors view on what you should do - 8 minutes  Professor Carolyn Young, Consultant Neurologist at the Walton Centre for Neurology and Neurosurgery. The Walton Centre looks after thousands of people with MS from diagnosis to rehabilitation. Prof Young shares her 'must do's for self management and health promotion. She also explains the importance of rehabilitation services for people with MS. Issues include exercise, diet, and stress Video
Living with your Emotions - 5 minutes  In addition to its physical symptoms, MS can have significant emotional effects. It can be difficult to adjust to the diagnosis of an unpredictable and chronic disease. Lack of knowledge can also add to the anxieties commonly experienced by people who are newly diagnosed  The National MS Society and Healthology developed a video to help you learn more about positive ways to manage the emotional impact of MS.  Read more about coping. Video
Symptom Management,- includes weakness, spasticity, visual problems and depression - 9 minutes  Dr. David Marks. The symptoms of multiple sclerosis can be as numerous as they are frustrating: weakness, spasticity, visual problems and depression, to name just a few. A primary focus of MS treatment is keeping them under control, and it's a constant challenge. The more management techniques you know about, the better the chance that you'll find an approach that works for you.  Read more about MS issues and symptoms Video
Memory and Cognition Issues - 13 minutes   For the 2.5 million people worldwide who have multiple sclerosis, the impact of the disease on motor control is the central issue. But the disease can also have a mental dimension, affecting a patient's cognitive functions. Not everyone with MS experiences memory or learning impairment, and for those who do, the effects are usually very subtle. Still, it is an important concern for many patients. A panel of experts  discuss what is known about this aspect of MS. Read more about memory and cognition issues Video
Exercise and MS - 5 minutes  In addition to being essential to general health and well-being, exercise is helpful in managing many MS symptoms. The National MS Society USA and Healthology have developed a  video to help you learn more about the positive benefits of exercise and good ways to get  yourself moving—and have fun while you’re doing it!  Read more about exercise and MS Video
Fatigue - Energy Management, some techniques for dealing with fatigue - 12 minutes   In the two parts of this film, Professor Peter Thomas from the Dorset Research and Development Support Unit in Poole talks about the project (2008) he leads researching into a Cognitive Behavioural Approach to fatigue management in multiple sclerosis (MS). He explains fatigue in people with MS, the potential causes and effects that it might have, and then talks about his work developing a Fatigue Management Program. Fatigue has been defined (2009) by the Fatigue Management Panel of the Multiple Sclerosis Council on Clinical Practice Guidelines as: A subjective lack of physical and/or mental energy that is perceived by the individual or caregiver to interfere with usual and desired activities.- Read more about fatigue
What's happening to me? - invisible MS - 7 minutes   Although MS has visible manifestations, many of its symptoms are not outwardly apparent. This is the "invisible" side of MS, which means that in many cases, only the patient is really aware of his or her symptoms. This can affect daily life as well as treatment. Join our MS specialists as they discuss "invisible MS" and ways patients can cope with it. Read the transcript Video
Tysabri - Balancing Risks and Benefits. Tysabri is a laboratory-produced monoclonal antibody. Tysabri is given once every four weeks by intravenous infusion.  It is designed to hamper movement of potentially damaging immune cells from the bloodstream, across the “blood-brain barrier” into the brain and spinal cord - read more including warnings and precautions associated with a potentially very dangerous side effect known as Progressive multifocal leukoencephalopathy (PML).  377 cases of PML have been identified resulting in severe disability with 85 reported deaths as at June 2013. Video


  Facts Sheet RM875MS
Road Map Reference

| Disclaimer